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Patient and caregiver needs in oncology. An Italian survey

Abstract

Aims and background

Cancer is a disease that has far-reaching consequences for patients and their families. The present study targets unmet caregiver needs so that better support can be provided and planned for.

Methods

The first phase of the study was to conduct a survey designed to explore basic needs (medical and nursing information, psychological support, social welfare). The survey also investigated the caregiver’s personal details (age, sex, degree of kinship). The survey was distributed to caregivers coming to the day hospitals of the 4 oncology departments involved in the study.

Results

A total of 137 relatives of cancer patients completed the survey. Among the explored needs, the most recurrent was the availability of a doctor who provides full information on the treatment choices. A further important request was for consistency between the information provided by doctors and that provided by other health-care workers, with specific reference to a patient-centered approach that can be easily and fully understood, available therapeutic options especially at home, and prognosis.

Conclusions

The study showed that the need for exhaustive and simple information provided by a referral physician is still an unmet need in the Internet age.

Tumori 2015; 101(6): 621 - 625

Article Type: ORIGINAL RESEARCH ARTICLE

DOI:10.5301/tj.5000362

Authors

Rossana Berardi, Zelmira Ballatore, Weruska Bacelli, Rosa Rita Silva, Ettore Tito Menichetti, Massimo Marcellini, Monia Duca, Giusi Giacomini, Katia Marilungo, Stefano Cascinu

Article History

Disclosures

Financial support: The study was supported by the Women’s Committee of Senigallia Council and the Province of Ancona.
Conflict of interest: All authors declare that they have no competing interests.

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Authors

Affiliations

  • Clinica di Oncologia Medica, Università Politecnica delle Marche, Ospedali Riuniti di Ancona, Ancona - Italy
  • U.O. Oncologia, Ospedale Profili, Fabriano (Ancona) - Italy
  • U.O. Oncologia, Ospedale Civile, Senigallia (Ancona) - Italy
  • U.O. Oncologia, Ospedale Urbani, Jesi (Ancona) - Italy
  • U.O. Oncologia, Ospedale di Civitanova, Civitanova Marche (Macerata) - Italy

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