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Issues patients would like to discuss at their review consultation in breast cancer clinics – a cross-sectional survey

Abstract

Aims and background. In breast cancer (BC) there are different therapies available with different side effects affecting the health-related quality of life (HRQOL) of patients. Here we report a novel tool, the BC-specific Patient Concerns Inventory (PCI). This work includes a survey that is part of the validation process to allow a larger cohort and comparisons with clinical characteristics. We report the concerns that BC patients would like to discuss in the outpatient clinic – using the PCI – and also their choice of multidisciplinary team members they would like to see.
Methods and study design. We carried out a cross-sectional survey – using the BCspecific PCI, the EORTC QLQ-C30 and the EORTC BC QLQ-BR23 – of patients who had completed their initial treatment and were attending a review outpatient clinic. 249 patients were recruited from February to July 2012.
Results. Survey responses were obtained from 80% (200/249). The three most frequent items were fear of cancer coming back (62%, 124), breast sensitivity/pain (46%, 92), and fatigue/tiredness and low energy levels overall (46%, 92). The most frequently selected members of the multidisciplinary team that patients wished to see were the breast care nurse (46%, 92), the medical oncologist (28%, 55) and the psychologist (20%, 40).
Conclusions. The PCI provides the opportunity for multiprofessional engagement across a range of issues specific to BC. It can identify issues relating to physical, psychological, sexual and social functioning, as well as issues relating to body image and lifestyle.

Tumori 2014; 100(5): 568 - 579

Article Type: ORIGINAL RESEARCH ARTICLE

DOI:10.1700/1660.18184

Authors

Anastasios Kanatas, Derek Lowe, Galina Velikova, Brenda Roe, Kieran Horgan, Richard J Shaw, Simon N Rogers

Article History

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Authors

  • Kanatas, Anastasios [PubMed] [Google Scholar]
    Leeds Teaching Hospitals and St James’s Institute of Oncology, Leeds General Infirmary, Leeds
  • Lowe, Derek [PubMed] [Google Scholar]
    Evidence-Based Practice Research Centre (EPRC), Faculty of Health, Edge Hill University, Ormskirk
  • Velikova, Galina [PubMed] [Google Scholar]
    St James’s Institute of Oncology, Leeds
  • Roe, Brenda [PubMed] [Google Scholar]
    Health Research, Edge Hill University, Ormskirk
  • Horgan, Kieran [PubMed] [Google Scholar]
    Leeds Teaching Hospitals, Breast Surgery Department, Leeds General Infirmary, Leeds
  • Shaw, Richard J [PubMed] [Google Scholar]
    Department of Head and Neck Surgery, Liverpool CR-UK Centre, Department of Molecular and Clinical Cancer Medicine, Liverpool
  • Rogers, Simon N [PubMed] [Google Scholar]
    Evidence-Based Practice Research Centre (EPRC), Faculty of Health, Edge Hill University, Ormskirk

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